Pain Organizations and Resources

A number of organizations, groups, and health associations are available to help educate people about pain as it relates to specific conditions and disease states, including those on the following list. To jump to entries beginning with a specific letter, select that letter. If you know of an organization that is currently missing from the list that should be included, please let us know.

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    A

  • Administration for Community Living. ACL is the Federal agency responsible for increasing access to community supports while focusing attention and resources on the unique needs of older Americans and people with disabilities.
  • Alliance of State Pain Initiatives. The Alliance of State Pain Initiatives (ASPI) is a network of state-based Pain Initiative organizations that work to remove the barriers that impede pain relief through education, advocacy and institutional improvement.
  • American Academy of Hospice and Palliative Medicine. AAHPM is an organization of physicians and other medical professionals dedicated to excellence in and advancement of palliative medicine through prevention and relief of patient and family suffering by providing education and clinical practice standards, fostering research, facilitating personal and professional development, and by public policy advocacy.
  • American Academy of Medical Acupuncture. The purpose of the American Academy of Medical Acupuncture® is to promote the integration of concepts from traditional and modern forms of acupuncture with western medical training to obtain a more comprehensive approach to health care.
  • American Academy of Orofacial Pain. The American Academy of Orofacial Pain, an organization of health care professionals, is dedicated to alleviating pain and suffering through the promotion of excellence in education, research and patient care in the field of orofacial pain and associated disorders.
  • American Academy of Pain Management. The American Academy of Pain Management is an inclusive, interdisciplinary organization serving clinicians who treat people with pain through education, setting standards of care, and advocacy.
  • Amercian Academy of Pain Medicine. The American Academy of Pain Medicine (AAPM) is the medical specialty society representing physicians practicing in the field of Pain Medicine. As a medical specialty society, the Academy is involved in education, training, advocacy, and research in the specialty of Pain Medicine.
  • Amercian Academy of Pediatrics. The American Academy of Pediatrics is committed to ensuring the optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
  • American Academy of Physical Medicine and Rehabilitation. The national medical society representing more than 8,000 physicians who are specialists in the field of physical medicine and rehabilitation (PM&R).
  • American Academy of Physician Assistants. Tha AAPA is a national professional society for physician assistants that represents a profession of more than 86,500 certified PAs.
  • American Back Society. The American Back Society is a non-profit organization dedicated to providing an interdisciplinary educational forum for healthcare professionals committed to relieving pain and diminishing impairment in patients suffering from neck and back conditions through proper diagnosis and treatment.
  • American Board of Pain Medicine. The American Board of Pain Medicine (ABPM) is committed to the certification of qualified physicians in the field of Pain Medicine.
  • American Cancer Society. With chartered divisions throughout the country and over 3,400 local offices, the American Cancer Society (ACS) is committed to fighting cancer through balanced programs of research, education, patient service, advocacy, and rehabilitation.
  • American Chronic Pain Association. The mission of the ACPA is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain, and to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain.
  • American Fibromyalgia Syndrome Association. The American Fibromyalgia Syndrome Association (AFSA) is the nation's leading nonprofit organization dedicated to funding research that accelerates the pace of medical discoveries to improve the quality of life for patients with fibromyalgia.
  • American Geriatrics Society. The American Geriatrics Society (AGS) is devoted to improving the health, independence and quality of life of all older people by providing leadership to healthcare professionals, policy makers and the public by implementing and advocating for programs in patient care, research, professional and public education, and public policy.
  • American Headache Society. AHS is a professional society of health care providers dedicated to the study and treatment of headache and face pain.
  • American Medical Association. The AMA works to promote the art and science of medicine and the betterment of public health in the United States.
  • American Nurses Association. The ANA advances the nursing profession by fostering high standards of nursing practice, promoting the rights of nurses in the workplace, and lobbying on health care issues affecting nurses and the public.
  • American Pain Society. APS is a multidisciplinary educational and scientific organization dedicated to serving people in pain.
  • American Pharmacists Association. Founded in 1852, APhA is the largest association of pharmacists in the United States. Of particular interest is the Pain Management Partnership.
  • American Psychological Association. The APA is the largest scientific and professional organization representing psychology in the United States. Its mission is to advance the creation, communication and application of psychological knowledge.
  • American Society of Anesthesiologists. Founded in 1905, the American Society of Anesthesiologists is an educational, research and scientific association with 43,000 members organized to raise and maintain the standards of the medical practice of anesthesiology and improve the care of the patient.
  • American Society of Clinical Oncology. The American Society of Clinical Oncology (ASCO) is a non-profit organization, founded in 1964, with overarching goals of improving cancer care and prevention and ensuring that all patients with cancer receive care of the highest quality.
  • American Society of Interventional Pain Physicians. ASIPP was formed in 1998 with the goal of promoting the development and practice of safe, high quality, cost effective interventional pain management techniques for the diagnosis and treatment of pain and related disorders.
  • American Society of Regional Anesthesia and Pain Medicine. The American Society of Regional Anesthesia and Pain Medicine is the premier organization that addresses the clinical and professional educational needs of physicians and scientists; assures excellence in patient care utilizing regional anesthesia and pain medicine; and investigates the scientific basis of the specialty.
  • American Society for Addiction Medicine. ASAM is a professional society representing over 3,000 physicians dedicated to increasing access and improving quality of addiction treatment, educating physicians and the public, supporting research and prevention, and promoting the appropriate role of physicians in the care of patients with addictions.
  • American Society of Pain Management Nursing. ASPMN is an organization of professional nurses dedicated to promoting and providing optimal care of individuals with pain, including the management of its sequelae.
  • American Society of Anesthesiologists. The American Society of Anesthesiologists is an educational research and scientific association of physicians organized to raise and maintain the standards of the medical practice of anesthesiology and improve the care of the patient.
  • American Society of Pain Educators. The American Society of Pain Educators (ASPE) is a nonprofit professional organization dedicated to improving pain management through the education and training of healthcare professionals to become Certified Pain Educators (CPEs). As the only organization focusing on pain educator training, the Society teaches healthcare professionals to serve as resources to educate their clinical peers, as well as patients, families, and caregivers, on ways to relieve pain by the safest means possible.
  • American Society of PeriAnesthesia Nurses. The American Society of PeriAnesthesia Nurses (ASPAN) is the professional specialty nursing organization representing the interests of nurses practicing in all phases of preanesthesia and postanesthesia care, ambulatory surgery, and pain management.
  • American Society of Regional Anesthesia and Pain Medicine. ASRAPM clinical and professional educational needs of physicians and scientists, strives for excellence in patient care utilizing regional anesthesia and pain medicine, and investigates the scientific basis of the specialty.
  • Arthritis Foundation, Northern California Office. Offers information, events, research funding, advocacy activities and other vital programs and services for the more than two million adults and children who live with arthritis in Northern California.
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    C

  • CancerCare. CancerCare is a national nonprofit organization that provides free, professional support services to anyone affected by cancer: people with cancer, caregivers, children, loved ones, and the bereaved. CancerCare programs - including counseling and support groups, education, financial assistance and practical help - are provided by professional oncology social workers and are completely free of charge.
  • California Society of Interventional Pain Physicians. The California branch of American Society of Interventional Pain Physicians (ASIPP).
  • Center to Advance Palliative Care. The Center to Advance Palliative Care (CAPC) is the leading resource for palliative care program development and growth.
  • Centre for Pediatric Pain Research. The Centre for Pediatric Pain Research is an international leader in children's pain research. The interdisciplinary research conducted by the faculty, students, and staff tackles many facets of children's acute and chronic pain. They are committed to conducting high-quality research on how to better understand, assess, and manage children's pain and translating this research into improved practice.
  • City of Hope Palliative Care Professional Resource Center. The purpose of the COH PRC is to serve as a clearinghouse to disseminate information and resources to assist others in improving the quality of pain management and end of life care.
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    D

  • Dannemiller Memorial Education Foundation. Dannemiller is widely known for its annual Anesthesiology and Pain Management Review Courses, and has become a leader in continuing education.
  • Department of Pain Medicine and Palliative Care/Beth Israel Medical Center. Pain management at Beth Israel Medical Center's Department of Pain Medicine and Palliative Care in New York.
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    E

  • Electro Therapy Association. The Electro Therapy Association sponsors seminars on Auriculotherapy, a non-invasive form of electrical stimulation to the external ear for the relief of pain and addictive behaviors.
  • Endometriosis Association. The Endometriosis Association was the first organization in the world created for those with endometriosis. As an independent self-help organization of women with endometriosis, doctors, and others interested in the disease, it is a recognized authority in its field whose goal is to work toward finding a cure for the disease as well as providing education, support, and research.
  • Endometriosis Research Center. Founded by Executive Director Michelle E. Marvel in early 1997, the ERC strives to improve the quality of life for women and girls with Endometriosis through our extensive programs and outreach efforts.
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    F

  • Facial Pain Association. The mission of The Facial Pain Association (formerly The Trigeminal Neuralgia Association) is to serve as an advocate for patients living with neuropathic facial pain, including trigeminal neuralgia, by providing information, encouraging research and offering support.
  • Fibromyalgia Association UK. FMA UK was established in order to provide information and support to sufferers and their families. In addition, the Association provides medical information for professionals and operates a national helpline.
  • Fibromyalgia Network. Our mission is simple: we aim to educate and assist patients with ad-free, patient-focused information that they can put to use today. We strive to make each issue of the Fibromyalgia Network Journal as accurate as possible, basing articles on published scientific findings, with many of them reviewed and edited by the experts for accuracy.
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    G

  • Greater Philadelphia Pain Society. The Greater Philadelphia Pain Society (GPPS) is a non-profit multidisciplinary organization dedicated to the study of prevention, diagnosis and rehabilitation of pain disorders and pain-related disability. GPPS is organized for the education and support of professionals and organizations concerned with pain and disability and of pain patients and their families. It also provides a focal point for GPPS professionals to collaborate and develop greater interdisciplinary perspectives.
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    H

  • Help for Headaches. Help For Headaches is a London based non-profit organization and a registered Canadian charity that is committed to educational services for those suffering from and treating headaches.
  • Hospice and Palliative Nurses Association. HPNA is the collaborative and visionary professional hospice and palliative specialty nursing organization with evidence-based educational tools to assist members of the nursing team
  • Hospice Education Institute. The Institute is an independent, not-for-profit organization, serving members of the public and health care professionals with information and education about the many facets of caring for the dying and the bereaved.
  • Hospital for Sick Children (also known as SickKids). SickKids is one of the largest paediatric teaching hospitals in the world. The hospital has an international reputation for excellence in health care, research, and teaching. SickKids is committed to improving the health and well-being of children and youth across Canada and around the world.
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    I

  • Institute for Healthcare Improvement. The Institute for Healthcare Improvement (IHI), an independent not-for-profit organization based in Cambridge, Massachusetts, is a leading innovator in health and health care improvement worldwide.
  • Institute for Safe Medication Practices. The Institute for Safe Medication Practices (ISMP), based in suburban Philadelphia, is a nonprofit organization devoted entirely to medication error prevention and safe medication use.
  • Institute for the Study and Treatment of Pain. The Institute for the Study and Treatment of Pain is a non-profit organization dedicated to research, treatment, training, and education in chronic pain.
  • International Association for Hospice & Palliative Care. IAHPC works to improve the quality of life of patients with advanced life-threatening conditions and their families, by advancing hospice and palliative care programs, education, research, and favorable policies around the world.
  • International Association for the Study of Pain. IASP is a leading professional forum for science, practice, and education in the field of pain.
  • International Federation of Gynecology and Obstetrics. The mission of FIGO is to promote the well-being of women and their children and to raise the standard of practice in obstetrics and gynecology around the world.
  • International Federation on Ageing. IFA believes in "generating positive change for older people throughout the world by stimulating, collecting, analyzing and disseminating information on rights, policies and practices that improve quality of life of all persons as they age."
  • International Pelvic Pain Society. The International Pelvic Pain Society (IPPS) was incorporated to serve as a forum for professional and public education about the treatment of chronic pelvic pain.
  • International Spine Intervention Society. The International Spinal Injection Society (ISIS) is an association of physicians interested in the development, implementation and standardization of percutaneous techniques for the precision diagnosis of spinal pain.
  • International Union Against Cancer. The IUAC develops its work in four strategic directions: cancer prevention and control, tobacco control, knowledge transfer, and capacity building and supportive care.
  • Interstitial Cystitis Association. The Interstitial Cystitis Association (ICA) is committed to finding more effective treatments and a cure for interstitial cystitis. The ICA promotes and funds research, educates the medical community and public, advocates for IC patients, healthcare providers and researchers, and offers support for IC patients and their families.
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    J

  • The Joint Commission. The Joint Commission accredits and certifies more than 20,000 health care organizations and programs in the United States, ensuring that all people experience the safest, highest quality, best-value health care across all settings.
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    K

  • KidsHealth. KidsHealth provides information about health, behavior, and development from before birth through the teen years.
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    M

  • The Mayday Pain Project. Provides pain information and education for patients and healthcare providers.
  • The Mesothelioma Center (Asbestos.com). Asbestos.com is committed to providing the latest, up-to-date information to our visitors in the hopes of spreading awareness about the dangers of asbestos cancer (mesothelioma). Their goal is to offer a one-stop resource on all asbestos and mesothelioma-related issues ranging from occupational exposure to treatment options.
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    N

  • National Association of State Controlled Substance Authorities. NASCSA's primary purpose is to provide a continuing mechanism through which state and federal agencies, as well as others can work to increase the effectiveness and efficiency of state and national efforts to prevent and control drug diversion and abuse.
  • National Association for Healthcare Quality. The NAHQ promotes the promise of healthcare improvement through innovative practices in quality and patient safety.
  • National Center for Health Statistics. The principal health statistics agency of the United States.
  • National Cancer Institute. The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Institute Act of 1937, is the Federal Government's principal agency for cancer research and training.
  • National Center for Complementary and Alternative Medicine. The National Center for Complementary and Alternative Medicine (NCCAM) is the Federal Government's lead agency for scientific research on the diverse medical and health care systems, practices, and products that are not generally considered part of conventional medicine.
  • National Coordinating Council for Medication Error Reporting and Prevention. The mission of the National Coordinating Council for Medication Error Reporting and Prevention (NCC MERP) is to maximize the safe use of medications and to increase awareness of medication errors through open communication, increased reporting and promotion of medication error prevention strategies.
  • National Fibromyalgia Association. The National Fibromyalgia Association is a 501(c) 3 nonprofit organization whose mission is to develop and execute programs dedicated to improving the quality of life for people with fibromyalgia.
  • National Fibromyalgia Research Association. The National Fibromyalgia Research Association is a source for what's new in fibromyalgia research and education. On their site you will find fibromyalgia diagnostic criteria and an Informational Guide. Also available is the newest material regarding the connection between the central nervous system (Chiari & cervical spinal cord stenosis) and FM/CFIDS.
  • National Headache Foundation. The National Headache Foundation exists to enhance the healthcare of headache sufferers. It is a source of help to sufferers' families, physicians who treat headache sufferers, allied healthcare professionals and to the public. The NHF accomplishes its mission by providing educational and informational resources, supporting headache research and advocating for the understanding of headache as a legitimate neurobiological disease.
  • National Hospice and Palliative Care Organization. The National Hospice and Palliative Care Organization (NHPCO) is the largest nonprofit membership organization representing hospice and palliative care programs and professionals in the United States. The organization is committed to improving end of life care and expanding access to hospice care with the goal of profoundly enhancing quality of life for people dying in America and their loved ones.
  • National Institutes of Health (NIH). The National Institutes of Health (NIH), a part of the U.S. Department of Health and Human Services, is the nation's medical research agency, making important medical discoveries that improve health and save lives.
  • National Multiple Sclerosis Society. The National MS Society is a collective of passionate individuals who want to do something about MS now, to move together toward a world free of multiple sclerosis. MS stops people from moving; we exist to make sure it doesn't.
  • National Organization for Rare Disorders. The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare "orphan" diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service.
  • National Pain Foundation. The NPF Mission is to improve the quality of life for those living with pain through information, education, and support that connects persons with pain to each other and to those that can help.
  • National Spinal Cord Injury Association. Founded in 1948, the National Spinal Cord Injury Association is the nation's oldest and largest civilian organization dedicated to improving the quality of life for hundreds of thousands of Americans living with the results of spinal cord injury and disease (SCI/D) and their families.
  • National Vulvodynia Association. The National Vulvodynia Association (NVA) is a nonprofit organization created in 1994 to improve the lives of individuals affected by vulvodynia, a spectrum of chronic vulvar pain disorders.
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    O

  • Oncology Nursing Society. The Oncology Nursing Society (ONS) is a professional organization of over 37,000 registered nurses and other healthcare providers dedicated to excellence in patient care, education, research, and administration in oncology nursing.
  • Ontario Physiotherapy Association. OPA is committed to leadership in physiotherapy through the provision of advocacy, professional development and career support services for its members, enabling them to be successful in their careers and in providing quality physiotherapy services to the citizens of Ontario.
  • Office of Cancer Complementary and Alternative Medicine. The Office of Cancer Complementary and Alternative Medicine (OCCAM) was established in October 1998 to coordinate and enhance the activities of the National Cancer Institute (NCI) in the arena of complementary and alternative medicine (CAM).
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    P

  • Pain.com. Provides a repository of pain articles and instructional information.
  • Pain Concern. Pain Concern provides information and support for pain sufferers, those who care for them and about them.
  • Pain and Palliative Care Resource Center/City of Hope. The purpose of the COHPPRC is to serve as a clearinghouse to disseminate information and resources to assist others in improving the quality of pain management and end of life care.
  • Pain and Policy Studies Group/Wisconsin University. The PPSG mission is to improve global pain relief by achieving balanced access to opioids in an effort to enhance the quality of life of people living with cancer and other painful diseases.
  • Pain Relief Foundation. The Pain Relief Foundation is a UK charity which funds research into the causes and treatment of human chronic pain and is concerned with education of health professionals about pain management.
  • Pain Treatment Topics. The mission of Pain Treatment Topics is to serve as a noncommercial resource for healthcare professionals & their patients, providing open access to clinical news, information, research, and education for a better understanding of evidence-based pain-management practices.
  • Pain Management Center at UCSF. The UCSF Pain Management Center at Mount Zion treats patients with complicated and chronic medical, surgical and neurological pain. The center has a team of doctors and therapists with specialties in anesthesia, neurology, medical psychology and physical therapy.
  • Peripheral Nerve Society. The Peripheral Nerve Society is an international organization of physicians and scientists working together to develop and provide the best treatments for people who have peripheral nerve diseases. This goal is realized by cooperation - supporting research, training scientists and healthcare professionals, setting standards of care, creating new treatments, and facilitating clinical trials.
  • Physiotherapy Pain Association. The PPA was formed to bring together and provide information for Physiotherapists with the common interest of managing patients with both acute and long term pain.
  • Practical Pain Management. Practical Pain Management is the most prominent pain journal for practicing pain specialists and clinicians on the front lines of pain. Founded in 2000, it's articles are written by pain experts and leaders in the field. The journal has a circulation of more than 46,000.
  • Promoting Excellence in End-of-Life Care. Promoting Excellence in End-of-Life Care was a national program of the Robert Wood Johnson Foundation dedicated to long-term changes to improve health care for dying people and their families. Though the Promoting Excellence project was a time-limited project that no longer operates, results of its work remain available.
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    R

  • Reflex Sympathetic Dystrophy Syndrome Association. The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) was founded in 1984 to promote public and professional awareness of Complex Regional Pain Syndrome (CRPS), also known as Reflex Sympathetic Dystrophy (RSD).
  • Rest Ministries and HopeKeepers. Rest Ministries, Inc. is a non-profit Christian organization that exists to serve people who live with chronic illness or pain, and their families, by providing spiritual, emotional, relational, and practical support through a variety of programs and resources.
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    S

  • Shaare Zedek Cancer Pain and Palliative Care Reference Database. A searchable database of over 30,000 references related to Cancer Pain and Palliative Care.
  • Sickle Cell Disease Association of America. The mission of SCDAA is to advocate for and enhance our membership's ability to improve the quality of health, life and services for individuals, families and communities affected by sickle cell disease and related conditions, while promoting the search for a cure for all people in the world with sickle cell disease.
  • Society for Integrative Oncology. The Society for Integrative Oncology (SIO) is a non-profit, multi-disciplinary organization of professionals dedicated to studying and facilitating cancer treatment and the recovery process through the use of integrated complementary therapeutic options. Our mission is to educate oncology professionals, patients, caregivers, and relevant others about the scientific validity, clinical benefits, toxicities, and limitations of state-of-the-art integrative therapies.
  • Society for Pain Practice Management. The Society For Pain Practice Management is an organization dedicated to educating specialists in the area of pain treatment and practice management.
  • Southern California Cancer Pain Initiative. Founded in 1993, the Southern California Cancer Pain Initiative (SCCPI) is a nonprofit volunteer interdisciplinary organization made up of physicians, nurses, pharmacists, social workers and many other professionals dedicated to the relief of cancer pain. SCCPI works closely with other professional and regulatory agencies to remove barriers to optimum pain relief.
  • Substance Abuse and Mental Health Services Administration. The Substance Abuse and Mental Health Services Administration (SAMHSA) mission is to reduce the impact of substance abuse and mental illness on America's communities.
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    T

  • Trigeminal Neuralgia Association (UK). The aims of this association are to provide information and offer support to members and to raise awareness of trigeminal neuralgia (TN) amongst medical professionals as well as the general public.
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    U

  • U.S. Pain Foundation. The mission of the U.S. Pain Foundation: to connect, inform and empower those living with pain while advocating on behalf of the entire pain community.
  • U.S. Pharmacopeial Convention. USP's mission is to improve global health through public standards and related programs that help ensure the quality, safety, and benefit of medicines and foods.
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    V

  • Vulvar Pain Foundation. The VP (Vulvar Pain) Foundation was established in 1992 as a non-profit organization to end the isolation of women suffering from vulvar pain and related disorders (fibromyalgia, interstitial cystitis, irritable bowel). The Foundation's purposes are to give reliable information, hope, safety, and success to sufferers and their families, to advance the standard of medical practice in treating vulvar pain syndrome, and to promote scientific research.
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    W

  • World Health Organization. WHO is the directing and coordinating authority for health within the United Nations system. It is responsible for providing leadership on global health matters, shaping the health research agenda, setting norms and standards, articulating evidence-based policy options, providing technical support to countries and monitoring and assessing health trends.